Know your rights and what to expect as an Ostomate
The Patient Bill of Rights was adopted in August 2017 at the UOAA Conference. The Bill of Rights is a guide for ostomy patients and families to use as they navigate from preoperative counseling to post-operative care and support.
It’s great because it helps ostomy patients and families know what is reasonable to request, giving them a clear way to start a dialogue and collaborate with their health care providers to ensure the best possible outcomes for their surgery and care
It is the declared objective of the International Ostomy Association that this CHARTER shall be realised in all Countries of the World.
The Ostomate shall:
1. Receive preoperative counseling to ensure that they are fully aware of the benefits of the operation and the essential facts about living with a stoma.
2. Have a well-constructed stoma placed at an appropriate site, and with full and proper consideration to the comfort of the patient.
3. Receive experienced and professional medical support and stoma nursing care in the preoperative and postoperative period both in hospital and in their community.
4. Receive support and information for the benefit of the family, personal caregivers and friends to increase their understanding of the conditions and adjustments which are necessary for achieving a satisfactory standard of life with a stoma.
5. Receive full and impartial information about all relevant supplies and products available in their Country.
6. Have unrestricted access to a variety of affordable ostomy products.
7. Be given information about their National Ostomy Association and the services and support which can be provided.
8. Be protected against all forms of discrimination.
9. Receive assurance that personal information regarding their ostomy surgery will be treated with discretion and confidentiality to maintain privacy; and that no information about their medical condition will be disclosed by anyone possessing this information, to an entity that engages in the manufacture, sales or distribution of ostomy or related products; nor shall it be disclosed to any person that will benefit, directly or indirectly, because of their relation to the commercial ostomy market without the expressed consent of the ostomate.
Issued by the IOA Coordination Committee
June 1993 – Revised June 1997
Revised by World Council 2004, 2007